Category: Election 2016

June is Pride Month and a chance to give colorful visibility to LGBTQ lives and relationships, celebrating inclusion, respect, and civil rights. To LGBTQ nurses, patients, caregivers, and allies – Happy #Pride!

ANA condemns discrimination in health care based on sexual orientation, gender identity, and/or expression. Experiencing any kind of discrimination, stigma, or disrespect from care providers is not just unpleasant. It can be traumatizing. It can lead people to hold back important information about their health or avoid seeking care altogether. These access barriers can lead to poor health outcomes.

Nursing advocacy plays a key role in promoting culturally congruent, patient-centered access for LGBTQ patients. To help you support Pride in health care this month and every month, we have rounded up some handy resources.

First, ANA’s Nursing Advocacy for LGBTQ+ Populations is a comprehensive statement and framework for improving culturally congruent care for lesbian, gay, bisexual, transgender, queer, or questioning (LGBTQ+) populations. The statement names barriers LGBTQ people often confront in health care, and the health disparities that result. ANA commits to addressing these concerns with a series of recommendations to defend and protect the human and civil rights of all members of LGBTQ populations.

Throughout the statement, it is clear there are many ways nurses can ensure positive experiences for LGBTQ patients and their families in the health care system, including through advocacy. There are also numerous links to helpful references if you want to learn more or share information about safeguarding access for LGBTQ populations.

One of those references is the National LGBT Health Education Center in the Fenway Institute. The Fenway Institute grew out of Fenway Health’s experience providing care to LGBTQ people in Boston, many of whom confront access barriers in local care delivery. The National LGBT Health Education Center offers education and advocacy programs that are grounded in the LGBT community, aiming to change the larger community. For example, the center’s website houses training materials and toolkits, and information on how to receive more in-depth technical assistance. These are valuable tools to make health care more inclusive and enable providers to meet the unique needs of LGBTQ patients.

Here are some additional resources to support LGBTQ patients and advocate to improve their care experience:

• LGBT Youth, from the Centers for Disease Control and Prevention.
• Health Equity and LGBT Elders of Color: Recommendations for Policy and Practice, from SAGE: Advocacy and Resources for LGBT Elders
• Creating End-of-Life Documents for Trans Individuals: An Advocate’s Guide, from the National Resource Center on LGBT Aging.
• Surrogate Medical Decision-Making and the LGBT Community, from the Human Rights Campaign.
• Letter signed on May 24, 2019, by ANA and 30 other health professional organizations opposing plans to weaken nondiscrimination protections for lesbian, gay, bisexual, transgender, and questioning (LGBTQ) individuals under Section 1557 of the Affordable Care Act.

Happy #Pride!

Greetings!

I am very excited to announce that I recently joined the Policy and Government Affairs team at the American Nurses Association. By way of getting to know me and my background, my career started on Capitol Hill where I worked in the House of Representatives for several years, and most recently, I had the privilege of working at the American Physical Therapy Association.

I do not think landing at ANA is purely coincidental. Just a couple of years ago my family went through a deeply terrifying time. One day my mother was healthy and happy and overnight everything changed. She developed hematomas on her brain and wound up in a weeks-long coma. As readers of this blog uniquely know, my family was terrified. We were in ICU for a very long time and developed relationships with many hospital workers.

We would not have made it through each day without the nurses we met. When we didn’t understand something (which happened frequently!), the nurses would break it down and explain what it meant. When we needed something for my mother, they would get it as soon as they could. Of course, there were also the moments where we didn’t see hope, and as busy as ICU nurses are, they would take a moment and were there for us.

This fall my family celebrates three years since that time. I couldn’t be happier to share that my mother is awake, at home, and she recently went to Orlando with her children and grandkids and had the vacation of a lifetime.

While we are so grateful to be past that stage, we are forever thankful to those nurses who not only helped my mom but helped our entire family. We have even gone back to the hospital to see the team and show off how well their former patient is doing!

Working in this role is what I can do to try and repay all of the nurses around the country that have done so much.

Here at ANA I am leading our legislative efforts on issues that include: Title VIII funding; safe staffing; workplace violence; health care transformation; and U.S. Nurse Cadet Corp. legislation. I encourage you to get in touch with your Members of Congress and tell them your stories about why it is so important they support these issues.

I look forward to working together to move forward sound policy that helps advance the nursing profession across the country.

Nurses are indispensable to ending HIV/AIDS in the U.S., the ANA reminded a federal stakeholder group advising the Department of Health and Human Services (HHS). The Administration has ramped up HIV prevention efforts, announcing plans to reduce the number of new HIV infections by 90 percent in the next decade. HHS will need nurses, including APRNs, to reach that target and improve the lives of people who are now living with HIV/AIDS (PLWHA).

In a letter to the CDC/HRSA Advisory Committee on HIV, Viral Hepatitis and STD Prevention and Treatment, ANA made the case to ensure nurses’ participation in new HIV initiatives. Lead agencies include the Centers for Disease Control and Prevention (CDC) and the Health Resources and Services Administration (HRSA) within HHS. HHS is seeking an HIV budget increase of $291 million, for CDC and HRSA to invest in local HealthForces that will target communities where HIV cases are the fastest growing.

Since the early 1980s when the U.S. health care system began to confront HIV and its enormous impact, nurses have been on the frontlines on many levels – creating new patient care models, conducting research, educating the community, and addressing workplace safety. Now, and over the decades since life-saving anti-retroviral therapies (ART) have been available, nurses are central to the care coordination that supports many PLWHA in life-saving treatment to stay virally suppressed.

Viral suppression, when viral load is no longer detectable, also significantly reduces risks of HIV transmission, so much so that advocates have coined the phrase “U=U”: Undetectable means untransmittable. Effective HIV treatment, then, is also critical to HIV prevention.

In the President’s 2019 State of the Union address and following months, the Administration has made bold commitments to dramatically reduce new HIV infections. According to the Kaiser Family Foundation, the U.S. lags other comparable countries in HIV suppression rates, at 54 percent compared to 84 percent in the United Kingdom, for example. And while HIV incidence had been falling in the United States in the early part of this decade, that progress has slowed in recent years.

Research and epidemiology clearly show that HIV incidence in the U.S. is now highly concentrated in a relatively small number of geographic areas. HIV in those areas is especially prevalent in Black/African-American communities, which have historically confronted negative social determinants of health and inequitable barriers to health care. Of all PLWHA in the U.S., 50 percent live in five states, primarily southern states.

The Administration has proposed a response that would invest in new HIV prevention in the geographic areas where infection rates continue to be among the highest. At the local level, health departments and other stakeholders would be given more resources to identify new HIV cases. Community health centers would play a lead role in delivering appropriate care so that PLWHA achieve viral suppression. There would also be an emphasis on reaching people who are at high risk of becoming HIV positive, and encouraging use of ART prophylactically for prevention.

ANA will continue advocating for nurses as the Administration pursues its agenda to prevent HIV. For more information about this effort, visit the CDC’s resources for providers in the Act Against AIDS campaign. To learn more about ANA’s advocacy, read our comments on updates to the National HIV/AIDS Strategy, and our letter to the CDC/HRSA Advisory Committee.